Tag Archive | sickness

The Cloud I Hide Behind


This morning began a little different than my usual one. I usually wake up at 5:30 am and lay out my husbands clothes. Then head to the kitchen to make his breakfast. And right about 6:15 sharp, he is kissing me good-bye as he heads out the door. But not without me adding our grand daughters favorite send off, “be safe.”

Not on this particular morning. I had a restless night and couldn’t sleep. I think I finally fell asleep around 2am. My mind was so busy I just couldn’t get comfortable. As I got into bed  and lay down next to my husbands side. I could hear the new sounds as he breathes. Ever since he was released from the hospital he hasn’t  sound the same. As he exhales there’s a loud paa sound. Before he got his c-pap he would snore so loud. I just couldn’t sleep. I remember a few times holding his nose and he would wake up and look at me, like what the heck are you doing? Id say, you were snoring. Then he’d roll over and go back to sleep. There was another time he was so loud I tried placing my pillow around my ears but that didn’t help. It only made me more upset. So I got this idea. What if I roll him on his side? The first time I tried to roll him on his side I rolled him right off the bed. I couldn’t believe what I had done. Oh my gosh, babe are you ok? My husband responds in this very sarcastic  annoyed tone, “yes!.” Umm you were snoring so loud I thought if I just turned you on your side… He interrupts, “turning me on my side is different then throwing me off the bed.” I want those moments back.  Last night I missed the silence of the c- cap. Heck I even missed the snoring but only just a tad.

What does this new sound all mean? Is this the beginning of bad things to come? No I can’t allow my mind to go to dark places like that. It’s to much to bare. I have a hard enough time blocking out the what if’s of my sister’s illness. I need need my trusted clouds. They bring me comfort. Because I can hide behind them and never see the truth that may a wait me. Sadly, last night no matter how hard I tried to go to happier times and moments. The storms kept rolling in like lighting bolts. Nothing seemed clear to me.

There is this song I’ve sung to my own children and to my grand children. When they come to me asking so many questions about the future or their own. It goes like this:

When I was just a little girl
I asked my mother, what will I be
Will I be pretty, will I be rich
Here’s what she said to me.

Que Sera, Sera,
Whatever will be, will be
The future’s not ours, to see
Que Sera, Sera
What will be, will be.

So I guess it’s my turn to say to my self, Que Sera, Sera,
Whatever will be, will be…

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But You Don’t Look Sick!


The beautiful woman in the picture above is my big sister.

If you met my sister you probably would never know she was sick with a terrible disease like, advance cirrhosis of the liver.

Here’s a question my sister faces pretty often in her daily life. But you don’t look sick!

See one day she was going along with her life as she always had. Going to work, caring for her family and grand children, then she became so very ill and ended up in the hospital. While she was in the hospital and having many test done, this is when she found out she had cirrhosis of the liver. She had no idea she was that sick. She hadn’t felt herself for about a year. She was battling excruciating back pain, and side pain. She has never been the type of person to complain or whine if she isn’t feeling good. So no one had a clue how much she was suffering in silence. That’s why when she ended up in the hospital so sick, people were in shock. Because she didn’t LOOK sick. When she was released from the hospital, family, friends and co-workers started coming to visit her. The first thing out of their mouth was, “You don’t look sick.” my sister shook her head, then said, “how do they expect me to look?” I could tell this was becoming frustrating for her. Because only a small few knew what it took for her to look the way she does each morning. I am one of the those few.

It’s amazing what eye concealer, foundation, eye make-up, a bot load of medication and a great attitude can do. It’s not until my sister gets home from work, do you see the tiredness in her eyes, her walk is slower and the pain has set in with a vengeance. And only then is when you know how sick she really is. Some mornings I find her sprawled out on her bed unable to get up, because she has just thrown up for the umpth time. I suggest to my sister, ” why don’t you call in today? Even God took a day off.” but no, that is not my sister’s style. She’s to busy worrying about Christmas coming. Always trying to help the other person, never thinking of her self first. I know people mean well. They don’t make that comment to upset or hurt her. Maybe they feel if they say it enough, it might, will the disease away. Wouldn’t that be wonderful?

Eleanor Roosevelt said it best, “No one can make you feel inferior without your consent.” The longer she lives with this disease, the more I realize how true that statement is.

Esther